Resources

Emotions, Realizations & Decisions

The hardest part of anything; the beginning. Here are some resources to help engage this personal journey.

• Online Sibling Groups
  • Sibnet
  • Sibling Leadership Network
• Sibling Leadership Network State Chapters
• SELF-CARE:
  • Insight Timer (Thousands of free guided meditations)

• Recommended Reading:
  • The Sibling Survival Guide
  • Being the Other One: Growing Up with a Brother or Sister Who Has Special Needs
  • Check This Box If You Are Blind: A Brother, A Sister, A True Story
  • The Subtle Art of Not Giving a F*ck

Starting the Process

Assessing your situation and making a battle plan

• Future Care Planning: A Roadmap for Family Caregivers
• The Arc’s Center for Future Planning
• Future Planning for Siblings of People with Disabilities Webinar
• Developing an Estate Plan for Parents of Children with Disabilities: A 15-Step Approach

The Difficult Conversations

It’s hard enough motivating yourself, now you have to motivate and convince the family. Here are some guides and tools to facilitate some heavy conversations.

• NDSC’s Adult Sibling Toolkit
• Charting the Lifecourse
• What Siblings Would Like Parents and Service Providers to Know
• The 40/70 Rule

Into Action

Future Planning to do list

• Medicaid Waivers by State (Applying for and setting up services differs from state to state, more to come)
• Finding an Attorney to help
  • Set up a Special Needs Trusts
  • Prepare wills
  • Consider Guardianship & Other Options
• Residential Options
• Financing
  • ABLE Accounts
  • Managing someone else’s money
  • Financial Freedom for Special Needs Families
• The Letter of Intent
  • Build Your Plan/Letter of Intent

Now What?

What happens after you’ve made your plan? (I’m not there yet…)

• Updating your Letter of Intent annually
• Preparing for Change & Loss

Other Resources

• Sibling Leadership Network Resources for Adults